Celine Dion’s Upcoming Documentary to Shed Light on Her Journey With Stiff-Person Syndrome

Celine Dion's upcoming documentary seeks to educate viewers about stiff person syndrome, a neurological illness she has been discovered to have.

'I Am: Celine Dion'

I Am: Celine Dion, a biopic produced by Amazon MGM Studios, follows the world-renowned singer for a year as she copes with a medical condition that affects her brain and spinal cord.

Amazon MGM Studios claims that the documentary will also show how determined she is to overcome her physical limits, return to performing, and live an honest life despite her condition, according to Good Morning America.

"This last couple of years has been such a challenge for me, the journey from discovering my condition to learning how to live with and manage it, but not to let it define me," Dion stated. "As the road to resuming my performing career continues, I have realized how much I have missed it, of being able to see my fans. During this absence, I decided I wanted to document this part of my life to help others who share this diagnosis."

Further, she expressed her desire for the film to bring attention to this under-recognized ailment.

According to The Guardian, the documentary is described as "emotional, energetic and poetic love letter to music" as per its official synopsis. Amazon MGM Studios chief Jennifer Salke lauds it as an intimate, honest depiction of an important phase in life.

Irene Taylor, who has been nominated for an Academy Award for her work on HBO's Trees and Other Entanglements and the sex abuse documentary Leave No Trace: A Hidden History of the Boy Scouts,, is the director of the new film.

In her 40-year career, Dion has sold over 250 million records and most recently had an appearance in the romantic comedy Love Again.

No premiere date for the documentary has been announced as of yet.

(Photo: VALERIE MACON / AFP via Getty Images) Singer Celine Dion attends the world premiere of Disney's Beauty and the Beast at El Capitan Theatre in Hollywood, California on March 2, 2017.

Rare Neurological Disorder

In an Instagram video posted in December 2022, Dion informed her followers that she was coping with stiff person syndrome. She said that the condition's associated spasms impact every part of her everyday life.

As a result, Dion was unable to continue performing, and in May of 2023, she canceled her world tour.

According to an interview Dion's sister gave to the media in December 2023, the singer was determined to return to the stage despite her lack of control over her muscles.

Progressive muscular stiffness and painful spasms in the lower back, legs, and torso might be symptoms of stiff person syndrome, an uncommon autoimmune neurological condition that was first identified in 1956. Approximately one to two out of a million people are affected by it.