Isa-Bella Leclair unfortunately has Parkes Weber syndrome, but that did not stop her from sporting a colorful bikini in a recent photo.

She has even shown other sufferers of the malformation that they, too, can wear revealing clothing and not be ashamed of the way they look.

"The hardest thing with living with PWS is living with the uncertainty of what is going to happen next and accepting that," Leclair told People. "PWS is such a rare condition with next to no research, so you just have to treat it as it goes. It's important to just live in the moment and not worry."

Leclair's right leg is twice the width of her left leg in the photo, according to The Inquisitr. However, as an advocate for raising awareness about the disease, she does not let it get in the way of her everyday life.

"I won't let anyone dim my sunshine because they are blinded....I'll tell them to put on some sunglasses cause I was born this way," Leclair said next to the courageous image.